Virginia Commission on Youth

Virginia General Assembly


Last Updated 2/18/03

 

 

Mental Retardation

 

 

Introduction

Mental retardation is not a single, isolated disorder. It is a term used to describe a condition affecting individuals who are limited in mental functioning to a level that affects many aspects of life, including basic skills such as communicating, taking care of personal needs, and social interaction. The national prevalence rate for mental retardation has been cited at approximately one percent (Developmental Disabilities Act, 1994).  In Fiscal Year 1999-2000, there were 15,947 children in Virginia ages 3 to 22 in special education who had received a mental retardation diagnosis (Virginia Department of Mental Health, Mental Retardation and Substance Abuse Services, 2001).

The first signs of mental retardation are usually displayed in early childhood, often within the first or second year of a child’s life. The child tends to lag behind his peers in milestones such as sitting up, walking, and talking. He also demonstrates lower than normal levels of interest in his environment and responsiveness to others (Gale Encyclopedia of Childhood and Adolescence, 1998). It is important that parents, pediatricians, and service providers are familiar with and recognize these signs, as early intervention serves as a crucial component to ensure that the development and quality of life of these children are maximized.

The Diagnostic and Statistical Manual of Mental Disorders - 4th Edition (DSM-IV), published by the American Psychiatric Association, provides the standard criteria for a diagnosis of mental retardation which are used in the diagnosis of children, as well as adults. The disorder is characterized by “significantly subaverage intellectual functioning,” which must be supported by three factors: intellectual impairment, significant difficulty in adaptive functioning, and onset before the age of 18 (APA, 1994).

The first required element of the diagnosis¾intellectual impairment¾is typically measured by cognitive testing instruments. Normal IQ measurements on standardized, individually administered tests such as the Wechsler Intelligence Scale or the Stanford-Binet test generally fall between 80 and 135 and, for this diagnosis, the child must have an intelligence quotient (IQ) that falls below 70 or 75 (Szymanski & King, 1999). The threshold for mental retardation is typically set at 70, and experts generally agree that scores of 71-75 are only consistent with mental retardation when significant deficits in adaptive behavior are present (Szymanski & King).  Normal IQ measurements on these tests generally fall between 80 and 135.

In addition, all children receiving the diagnosis must also demonstrate significant impairment in two or more of the following adaptive skill areas: communication, self-care, home living, social skills, community use, self-direction, health and safety, functional academics, leisure, and work (DSM-IV). There are standardized scales to measure these behaviors, but they often do not capture all of the functional domains, and therefore this element of diagnosis is typically measured after a clinical assessment of the child (Szymanski & King, 1999).

The DSM-IV also requires that the onset of symptoms occur prior to the age of 18. It is important to note, however, that experts warn that children under the age of two should not be given a diagnosis of mental retardation unless the deficits are relatively severe and/or the child has a condition that is highly correlated with mental retardation, such as Downs Syndrome. Instead, service providers should acknowledge the cognitive or behavioral deficit as a form of developmental disability and leave room for further diagnosis as the child gets older (Biasini et al., in press; Sattler, 1992). “Mental retardation” should not be used interchangeably with the term “developmental disability.” A developmental disability is not a medical term, but is instead a legislative concept referring to a broad spectrum of disorders, including mental retardation, epilepsy, and autism.

A diagnosis of mental retardation has been further classified based on the child’s level of impairment. The four categories adopted by the DSM-IV are: mild (IQ between 50/55 and 70), moderate (IQ between 35 and 50), severe (IQ between 20 and 35), and profound (IQ below 20). Studies have found that 80 to 85 percent of those with the diagnosis fall within the mild mental retardation range, while less than six percent are diagnosed with severe or profound mental retardation (Szymanski & King, 1999).  

Etiology

There are numerous causes for mental retardation. Those most frequently cited include external factors such as infections, trauma, toxins, premature births and delivery problems.  Genetic disorders have also been cited as a frequent cause of mental retardation, accounting for approximately one third of cases (Szymanski & King, 1999). It is important for the causes of retardation to be identified if possible, in order to clarify the prognosis and tailor treatment efforts (Szymanski & King). Furthermore, the identification of causation may be valuable in alerting the clinician to possible medical and behavioral complications that occur more frequently in certain conditions (Szymanski & King). However, research has shown that in 58 to 78 percent of the cases of mild retardation and in 23 to 43 percent of severe cases, no official cause has been determined (Szymanski & King).

A multidisciplinary team that may include psychologists, psychiatrists, pediatricians, and clinical geneticists typically conducts the assessment for mental retardation. All assessments should be comprehensive, and should include standardized intelligence testing, evaluation of adaptive skills through testing or clinical evaluation, biomedical and family history evaluation, and psychological and behavioral testing (Szymanski & King, 1999).  

Comorbidity with Mental Illnesses

Individuals who receive a diagnosis of mental retardation frequently suffer from additional mental disorders as well (Masi, 1998). Clinicians and researchers have explained this high prevalence of comorbidity as the result of the psychological vulnerability of children with mental retardation. This can have a significant impact on a child’s coping skills and mental health, and it may be one of the primary factors limiting the functioning, quality of life, and adaptation of mental retardation to community life (Masi).

The prevalence of comorbidity of mental illnesses has been found to range from 27 to 71 percent in children with mental retardation (Bregman, 1991). There is a substantial range of variation in the prevalence rates found in prior studies due to differences in methodology, diagnostic definitions, and population sampling strategies among the different studies. The most common comorbid conditions are described in more detail below:

·    General Medical Conditions Seizure disorders are present in 15 to 30 percent of individuals with severe or greater mental retardation, and motor handicaps (20 to 30 percent) and sensory impairments (10 to 20 percent) are also frequently reported (Szymanski & King, 1999).

 

·    Pervasive Developmental Disorders – Mental retardation is extremely common in children with pervasive developmental disorders. Approximately 75 percent of autistic children are also diagnosed with mental retardation (Fombonne, 1997). However, a reciprocal relationship has not been reported; the majority of children with mental retardation do not display significant impairments in reciprocal social interaction that are typically present in pervasive developmental disorders such as autism.

 

·    Attention Deficit Disorders (ADD and ADHD) – The incidence of Attention Deficit Disorder (ADD) is more frequent in persons with mental retardation (18 percent) than in the general population (9 percent) (DSM-IV).  Attention Deficit Hyperactivity Disorder (ADHD) is also particularly frequent, with a range of 4 to 11 percent of persons with mental retardation affected by this disorder (Feinstein & Reiss, 1996). Experts have attributed the frequency of these diagnoses in the mentally retarded to the fact that inattention is often a component of intellectual impairment.

 

·    Conduct Disorder – It has been reported that approximately one third of children and adolescents with mental retardation display the characteristics of conduct disorder (Richardson et al., 1985).  However, experts caution that it is important to consider the child’s circumstances, ability to understand social rules, and possession of sufficient skills to communicate opposition when proposing such a diagnosis (Szymanski & King, 1999).

 

·    Behavior Disorders – Children with greater degrees of mental retardation have been found to display increased aggressiveness, feeding disorders, stereotyped movements and self-injurious behavior (Masi, 1998). Self-injurious behavior is particularly common, with approximately 10 to 15 percent of persons with mental retardation displaying these characteristics (Oliver et al., 1987). The tendency to self injury is particularly common in certain mental retardation syndromes, such as Lesch-Nyhan, Prader-Willi, as well as in patients with mental retardation who experience mood disorders (depressive and manic), schizophrenia, personality disorders, and anxiety disorders (especially obsessive compulsive disorder) (Masi).

 

·    Mood Disorders – Mood disorders, especially of the depressive nature, are quite common in persons having mental retardation and are believed to be significantly underdiagnosed (Szymanski & King, 1999). Social isolation, stigmatization, and poor social skills put children with mental retardation at increased risk for depression (Reiss & Benson, 1985). The symptoms are often triggered by external stressful events, but ordinary life changes can also be responsible (Masi, 1998). Bipolar mood disorders are also present in the mentally retarded, but are more difficult to recognize. They have been found to involve dysphoria coupled with periods of irritability, aggressiveness, or self-injury, rather than the more typical manic episode (Masi).

 

·    Anxiety Disorders – While it is likely that these disorders are highly prevalent in persons with mental retardation, they are believed to be underreported due to the difficulty diagnosing persons of limited intelligence (Masi, 1998). Research indicates that the most frequent manifestations of anxiety disorders in this population include acute episodes of anger, flight, and crying or compulsions (repetitive, ritualistic behaviors) (Masi). Clinicians have found that psychosocial stress factors, including fragile self-esteem, fears of failing, and loss of caregivers are likely contributors to the psychological difficulties of this population (Szymanski & King, 1999).

 

·    Posttraumatic Stress Disorder (PTSD) – PTSD is also believed to be significantly under-diagnosed in this population (Szymanski & King, 1999). Mentally retarded children are particularly vulnerable to abuse given their high level of dependency and their tendency to want to please others, as well as lack of understanding of their rights. They may also be targeted because of their lack of communication skills, which may prevent reporting.

 

·    Schizophrenia – The incidence of schizophrenic disorders has been found to be higher in children diagnosed with mental retardation than in the general population (Heaton-Ward, 1977).  All forms of psychotic disorders have been identified in mentally retarded persons (Masi, 1998).  

The diagnostic evaluation for psychiatric disorders is principally the same for patients with mental retardation, child and adult, as it is in the general population (Szymanski & King, 1999). It is important to recognize, however, that the psychiatric diagnostic assessment of children with mental retardation must be comprehensive and consider biological, psychological, and social contexts, rather than being merely a “medication evaluation” focused only on the choice of drug to suppress a disruptive behavior. Furthermore, any additional mental health diagnosis should be formal and specific, rather than a nonspecific description of “behavior disorder” or “challenging behavior.”  It is important that the child’s assessment and resulting diagnosis demonstrate that he is ill, rather than merely “bad” or “noncompliant.”  

There are certain specific limitations that affect the reliability of the dual diagnosis in children and adolescents with mental retardation. First of all, the level of communication skills that the child or adolescent exhibits is strongly related to the reliability of the diagnosis (Szymanski & King, 1999). Individuals with more severe cognitive limitations are less likely to be given a dual diagnosis than children with lower levels of impairment due to their inability to communicate their symptoms and distress (Borthwick-Duffy & Eyman, 1990). Evaluation of significantly impaired children requires the mental health assessor to depend on information provided by the caregivers familiar with the child and direct behavioral observations, which tend to be less informative and reliable.  

The reliability of the diagnosis is also highly reliant on the availability of information regarding the biological, psychological, and social history of the child or adolescent (Biasini et al., in press). The child’s history of behavior and symptoms are often crucial in making a diagnosis and, in the absence of this information, the evaluator is placed in the difficult position of making a diagnosis strictly on current symptoms and behavior without being fully informed of a child’s treatment history. This information is particularly crucial in the evaluation of children with profound and severe mental retardation. Many psychologists and psychiatrists rely heavily on biological markers, observable signs, and patterns of family psychopathology to diagnose these severely impaired children (Sturmey, 1995).  

The strength and accuracy of a diagnosis is also directly affected by the experience and training of the clinician conducting the evaluation (Szymanski & King, 1999). It is crucial that the assessment be conducted by an individual specially trained in the evaluation and treatment of children with mental retardation. Furthermore, clinicians must recognize that there are often mismatches between the behaviors scripted in the DSM-IV for certain diagnoses and the symptoms presented in children with mental retardation (Biasini et al., in press). These differences can lead to under-diagnosis; therefore evaluators must be comprehensive in their approach and think outside the usual formulas when diagnosing mentally retarded children (Sturmey, 1995).  

Treatment

The treatment of children with mental retardation is based on two guiding principles: normalization and community-based care (Szymanski & King, 1999). Normalization requires that children with mental retardation live under patterns and conditions of everyday life that are as close as possible to mainstream society. The concept of community-based care flows directly from this principle, calling for the treatment and integration of mentally retarded children within the community to the maximum extent possible. No more than 10 percent of persons with mental retardation in this country have ever lived in institutional settings, and most can be found either living with their families or in community-based out-of-home placements such as foster care, group homes, and independent living programs (Szymanski & King). Service providers have found that, with proper services, the majority of children with mental retardation do well in the community. Those children with mental retardation who are admitted to an institutional setting typically display symptoms of severe mental disorder or intensive or massive medical needs in conjunction with mental retardation.  

The primary goal of service providers specializing in mental retardation is prevention, as there is no cure for the condition once the damage has occurred (Szymanski & King, 1999). Whenever possible, providers hope to prevent conditions that may result in mental retardation in children by educating women and families about the need for behaviors such as abstinence from alcohol during pregnancy and frequent child immunizations. Moreover, if an underlying condition that may lead to mental retardation has been identified in a child, providers focus on the treatment of that specific disorder in order to minimize potential brain injuries that could increase the risk of mental impairment.  

However, once a child has been diagnosed with mental retardation, providers begin to pursue early intervention, education, and ancillary treatments, such as physical, occupational, and language therapies (Szymanski & King, 1999). In addition, family support and other services are typically put into place to ensure that the child is receiving comprehensive care in the home, school, and community.  

The methods and intensity of treatment are adapted as the child progresses in age. In infants, exercises and special types of play are used to provide sensory and motor stimulation and enhance development (Gale Encyclopedia of Childhood and Adolescence, 1998). All states are required by law to offer early intervention programs for mentally retarded children from the time they are born. Once the child reaches the age of three, federal law requires that special education programs be made available for the child and family. These services concentrate on self-care, such as feeding, dressing, and toilet training, and also provide assistance with language and communication difficulties and physical difficulties. As the child gets older, the emphasis of special education programs changes to training in daily living skills as well as academic subjects. Treatment efforts will also include medical care for any comorbid physical conditions, such as seizure disorders, motor handicaps, and sensory impairments, as well as treatment of any psychosocial dysfunction and comorbid mental disorders.

Several factors may impact the choice of treatment method in children with mental retardation. First, the child’s level of cognitive and communication skills may cause a service provider to adapt the method of treatment. For example, a child who lacks communication skills would be unable to benefit from verbally-based treatments such as psychotherapy; consequently, behavioral modification and educational accommodations would be more effective. Another consideration is the impact of any concurrent general medical disorders.  An effective treatment plan requires that the service provider recognize the child’s physical limitations and synthesize physical, developmental, and psychological needs and interventions (Szymanski & King, 1999).  

Furthermore, the site of treatment may impact the methodology used.  In most cases, outpatient settings are appropriate if the necessary services can be secured in the community. However, providers must be more cautious when placing mentally retarded children in inpatient treatment facilities. Clinicians have reported that not all of these facilities are familiar with needs of children with mental retardation and many are not equipped to provide these children with appropriate therapy, habilitative or recreational programs and other necessary services (Szymanski & King, 1999). Consequently, placements must be carefully made after the provider has gained a wealth of knowledge regarding the services offered and the methods used by the facility.  

An additional factor that can have a significant impact on treatment efforts is the willingness of the child and family members to participate and comply with the therapeutic plan. Education and ongoing support are essential, and detailed explanations must be given to family members to ensure that they understand all of the behavioral and pharmacological interventions that are being used to treat the child.  

Developmental and Educational Services

All states are required by law to offer early intervention programs for children with mental retardation from the time they are born. Infant/toddler services can be home-based, center-based, or some combination of these two methods. The nature of the services is determined based on an assessment of the child and the family priorities. Under federal law, these considerations must be used to develop an Individual Family Service Plan (IFSP) for the child, which should include input from all parties participating in the intervention. This plan is usually developed and coordinated by a case manager who is available and acceptable to the family. The services that are provided in response to this plan may include assistive technology, intervention for sensory impairments, family counseling, parent training, health services, language services, nursing intervention, nutrition counseling, occupational therapy, physical therapy, case management, and transportation to services (Biasini et al., in press).  

As the child gets older, psychoeducational services must be provided. The Individuals with Disabilities in Education Act (IDEA) (Public Law 94-142, Public Law 99-457, and Public Law 102-119) requires that children with mental retardation or related developmental disorders receive a free and appropriate education. Interventions are based on the needs of the child as determined by a team of professionals. They should address the priorities and concerns of the family and should be provided in the least restrictive and most inclusive setting, allowing them to have every opportunity to interact with nondisabled peers and to have access to the community resources available to all other children.  

The services provided to preschool children and school-aged children can be home-based, but are more frequently center-based. As in the case of infants and toddlers, an Individualized Education Plan (IEP) is developed through team evaluation and parent input.  This plan describes the objectives for improving the child's skills and may include family or parent-focused activities. It may include special education services, child counseling, occupational therapy, physical therapy, language therapy, recreational activities, school health services, transportation services, and parent training or counseling. These services must also be provided in the least restrictive setting possible, such as a regular preschool program, Head Start Center , or the child's home (Biasini et al., in press).  

Treatment of Comorbid Conditions

The general principles of treatment are the same as those for children with other mental disorders. However, treatment techniques may need to be modified in order to adapt to the individual’s developmental level, particularly with regards to communication skills.  

There are two elements that have a significant impact on the effectiveness of psychotherapy in children with mental retardation. First, the child must exhibit a sufficient level of communication skills in order for this type of therapy to be appropriate. Second, in order to maximize results, treatment must be implemented across settings (classroom, home, and other environments); and the therapist must collaborate with the other interested parties in the child’s life, such as teachers, family members, and other service providers (Szymanski & King, 1999).  

The most effective forms of psychotherapy are:

·    Individual therapy – This type of intervention has been found to be beneficial for mentally retarded children with higher cognitive skills (Harris, 1995). It is best conducted by a therapist specifically trained in developmental disorders. Techniques and activities should be adapted to the child’s chronological age and level of development (Szymanski & King, 1999).

 

·    Family therapy – Research supports the benefits of family therapy for children with mental retardation (Harris, 1995). It typically focuses on the caregiver’s identification and support of the child’s strengths and independence, and the provision of opportunities for success. It may also include educational and emotional support components. The family should be seen as treatment team members, as they are essential to recognizing the child’s strengths, avoiding guilt feelings and overprotection, supporting the child’s pathways to independence, and providing opportunities for success. This form of therapy has also been found to be beneficial in assisting in locating resources, identifying entitlement for services and providing advocacy, empathy, and concrete advice in management of the child’s disability (Szymanski & King, 1999).

 

·    Group therapy – Therapeutic efforts in a group environment have been found to be particularly useful with adolescents who have relatively good verbal skills, as they often benefit from peer interaction and support (Szymanski & King, 1999; Harris, 1995).  Multiple family group therapy has also been found to be beneficial, as it provides the family and child with support in a context similar to society at large (Szymanski & Kiernan, 1983).

 

·    Behavior modification – Behavioral modification has been reported to be beneficial to children with mental retardation that lack social skills or demonstrate problem behaviors such as self-injury (Reiss, 1985). This intervention provides a consistent and structured framework for teaching appropriate behavioral patterns, as well as adaptive life skills. It should be generalized and consistent in all settings, such as home and school, and should focus on teaching appropriate skills and behaviors to replace maladaptive behaviors, rather than merely suppressing them (Szymanski & King, 1999).

 

·    Social skills training – Social skills training has also been found to improve the integration of mentally retarded children into the community (Hollins et al., 1994). Those who receive social skills training are taught effective social interactions and appropriate social behavior.

 

·    Cognitive therapy – This form of therapy teaches children with mild retardation to recognize situations in which they get into trouble and to adopt alternative behaviors and solutions. It has only recently been adapted for use with mentally retarded children, and therefore research regarding its effectiveness is limited (Benson, 1992).  

Pharmacological Treatment

The effects of medication are not generally different in mentally retarded children than in the general population (Szymanski & King, 1999). However, certain issues related to pharmacology have been recognized exclusively in the mentally retarded population. For example, clinicians have found that medication is often prescribed to mentally retarded children for symptom suppression without being integrated into the overall treatment plan (Szymanski & King, 1999). The literature repeatedly advises that medication should not be used for the convenience of caregivers or as a substitute for appropriate services. An additional concern is that follow-up behavioral data is infrequently collected and providers often fail to monitor for side effects. This is especially important in mentally retarded populations, because these patients may be unable to report symptoms adequately.  

While psychotropic drugs are not often used with mentally retarded children, they are most often prescribed in patients who exhibit disruptive behavior, including self-injury, stereo-typed behaviors (such as hand or finger twisting, or complex whole body movements), and aggression (Szymanski & King, 1999).  

Unproven Treatments

The effectiveness of diet restrictions in mentally retarded patients generally is not supported by research (Szymanski & King, 1999). These types of treatments include vitamin and mineral supplements and various dietary restrictions, such as yeast and gluten-free regimens.  

Other Important Treatment Elements

Cultural Considerations

Any assessment of adaptive behavior focuses on how well children can function and maintain themselves independently and how well they meet the personal and social demands imposed on them by their cultures. Because various cultures may hold their own views regarding the level of functioning/skills expected in children of certain ages, clinicians must be culturally sensitive in diagnosing children with developmental delays and retardation. In addition, the sociocultural background and native language of the child should be considered in assessing intelligence and level of impairment (Szymanski & King, 1999).  

Family Involvement

 Service providers must make every effort to include the family in all aspects of treatment and planning. They must consider the level of knowledge and understanding of the family regarding the disability of the child, and must also be sure that the family is sufficiently informed of all service and treatment options. If professionals fail to acknowledge parents as partners in the process, they run the risk of alienating them in the process. This can result in a lack of interest or participation in necessary services.  

Availability of Community Services and Supports

The Arc, a non-profit organization that supports the mentally retarded, has reported that approximately 200,000 individuals nationwide are on waiting lists for such essential supports and services as service coordination, housing, employment, in-home supports, early intervention, transportation, and respite care (The Arc, 1999). A report by the Virginia ’s Department of Mental Health, Mental Retardation, and Substance Abuse Services (DMHMRSAS) shows that service availability for mentally retarded children is also a serious concern in Virginia . In its Comprehensive State Plan, the DMHMRSAS reported that 1,858 children and adolescents were on the waiting list for mental retardation services (DMHMRSAS, 2001).  

Research indicates that lack of services can exacerbate the problems of children with mental retardation, as it may allow for an increase in the severity of the disability or learning delays (The Arc, 1999). Furthermore, the lack of services may also lead to greater dependence, isolation, and a decrease in self-esteem and productivity. Consequently, providers and policy makers must make every effort to identify these children and provide them with necessary services to ensure that they become productive members of society.

 

Sources

American Psychiatric Association. (1994). Diagnostic and Statistical Manual of Mental Disorders -  4th edition (DSM-IV). Washington , D.C. : American Psychiatric Association.  

Benson, B.A. (1992). Teaching anger management to persons with mental retardation. Worthington , OH : IDS Publications Corporation.  

Biasini, F.J., Grupe, L.. Huffman, L. & Bray, N.W. Mental retardation: A symptom and a syndrome. In S. Netherton , D. Holmes, & C. E. Walker, (eds.), Comprehensive Textbook of Child and Adolescent Disorders. New York : Oxford University Press, in press.  

Borthwick-Duffy , S.A. & Eyman, R.K. (1990). Who are the dually diagnosed? American Journal of Mental Retardation, 94, 586-95.  

Bregman, J.D. (1991). Current developments in the understanding of mental retardation, Part II: Psychopathology, Journal of the American Academy of Child and Adolescent Psychiatry, 31, 861-72.  

Developmental Disabilities Assistance and Bill of Rights Act Amendments of 1994, P.L. 103-230, Section 101(a)(1).  

Feinstein, C. & Reiss, A.L. (1996). Psychiatric disorder in mentally retarded children and adolescents: The challenges of meaningful diagnosis. Child and Adolescent Psychiatric Clinics of North America , 5, 827-52.  

Fombonne, E. (1997). Epidemiology of autism and related conditions. In Volkar, F.R., (ed.), Autism and Pervasive Developmental Disorders. England : Cambridge University Press, 32-63.  

Gale Encyclopedia of Childhood and Adolescence. Mental Retardation. Gale Research, 1998.  

Harris, J.C. (1995). Developmental Neuropsychiatry, Vols. 1-2. New York : Oxford University Press.  

Heaton-Ward, A. (1977). Psychosis in mental handicap. British Journal of Psychiatry, 130, 525-33.  

Hollins, S., Sinason, V., & Thompson, S. (1994). Individual, group, and family psychotherapy. In Bouras, N. (ed.), Mental Health in Mental Retardation, New York : Cambridge University Press, 233-43.  

Masi, G. (1998). Psychiatric illness in mentally retarded adolescents: Clinical features. Adolescence, 33, 425-35.  

Oliver, C., Murphy, G.H., & Corbett, J.A. (1987). Self-injurious behavior in people with mental handicap: A total population study. Journal of Mental Deficiency Research, 31, 147-62.  

Reiss, S. (1994) Handbook of Challenging Behavior: Mental Health Aspects of Mental Retardation. Worthington , OH : IDS Publishing.  

Reiss, S. & Benson, B.A. (1985). Psychosocial correlates of depression in mentally retarded adults: Minimal social support and stigmatization. American Journal of Mental Deficiency, 89, 331-37.  

Richardson , S.A. , Koller, H., Katz, M. (1985). Continuities and change in behavior disturbance: A follow-up study of mildly retarded young people. American Journal of Psychiatry, 55, 220-29.  

Sattler, J. M. (1992). Assessment of Children 3rd Edition. San Diego : Jerome M. Sattler, Publisher, Inc.  

Sturmey, P. (1995). DSM-III-R and persons with dual diagnoses: Conceptual issues and strategies for future research. Journal of Intellectual Disability Research, 39, 357-364.  

Szymanksi, L.S. & Kiernan, W.E. (1983). Multiple family group therapy with developmentally disabled adolescents and young adults. International Journal of Group Psychotherapy, 33, 521-34.  

Szymanski, L.S. & King, B.H. (1999). Practice parameters for the assessment and treatment of children, adolescents, and adults with mental retardation and comorbid mental disorders, Journal of the American Academy of Child and Adolescent Psychiatry, 38, 5S-31S.  

The Arc, Availability of Community Services and Supports: Position Statement # 21.  (Oct. 1999).  

Virginia Department of Mental Health, Mental Retardation, and Substance Abuse Services. (2001). Comprehensive State Plan: 2002-2008.

 

 

Additional Resources/Organizations

American Association on Mental Retardation
4444 North Capitol Street , NW. Suite 846 , Washington , DC 2001-1512
Website:  http://aamr.org

Also,
Mental retardation: Definition, classification, and systems of supports (1992)  

National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492 , Washington , D.C. 20013
1-800-695-0285 (Voice/TTY)

Email:  NICHCY@aed.org; website: http://www.nichcy.org
 

The Arc (formerly Association for Retarded Citizens), website: http://www.thearc.org  

IDEA 1997 Statute on Implementing Regulations: contact the United States Department of Education at (202) 205-5465 or (202) 205-5507, or website: http://www.ed.gov/offices/OSERS/Policy/IDEA/

 

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